a_natural_beauty: (Default)
[personal profile] a_natural_beauty
https://www.npr.org/2025/03/24/nx-s1-5338622/23andme-bankruptcy-genetic-data-privacy

So sadly not too long ago tonight I learned of 23&me filing for bankruptcy. I love this site, it's been my "go to" for finding out more about myself as well as for my mom and dad. It wasn't too long ago I wrote about my results from this site and the other I use - ancestry.com. But 23&me was my favorite, I feel like it was easy to understand, modern and educational. I found a distant cousin who lives in England who we are friends and talk on FB. Other family members use this site, too.
Now I'm not sure what I should do... should I wipe my genetic data from the site? How risky is it if it's still on there... who may come of it? I feel like there are more important questions to be asked and sorted out. I'm going to give it some time and think it over but I thought I'd see if any of you have any thoughts on this matter. I'd appreciate any advice. This bums me out quite a bit.

Date: 2025-03-26 08:26 am (UTC)
fred_mouse: line drawing of sheep coloured in queer flag colours with dream bubble reading 'dreamwidth' (Default)
From: [personal profile] fred_mouse

My knee jerk response is to download whatever info you can, and then delete. Because there are a lot of bad options on who might get that data.

However, I have also not done any of these tests, because I don't trust the for profit genetic testing industry at all, so I'm coming from a much more cynical/paranoid starting point than you.

Date: 2025-03-28 01:27 pm (UTC)
fred_mouse: line drawing of sheep coloured in queer flag colours with dream bubble reading 'dreamwidth' (Default)
From: [personal profile] fred_mouse

I've now seen [personal profile] white_aster's comments, and they have a much more nuanced and logical set of thoughts, and I agree entirely. Because a bad case scenario is that an insurance company buys it for the data.

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